Great news! We are going home Monday!
Ellis is doing very well and her doctors say that she is ready to go home. Greg and I have been learning all the things we have to know to care for her on our own, and after a few more days we think we will be ready. We are so blessed and so thankful!
Going home is a huge step forward for Ellis, but it will not mean the end of her challenges. She is a strong and resilient little girl, and we have every confidence that she is going to flourish in her own home. We will still be going to lots of doctor visits, both at home and back in Cincinnati. And further down the road she will most likely have to have some more surgery for her jaw and to correct some cosmetic issues. She will still be receiving occupational, physical, speech, and swallowing therapies as well. But the stronger and bigger she gets, and the more her muscles develop, the sooner she can be rid of her trach and feeding tube. All that is in the future. For now we are focused on getting her home and helping her ease into her new comfortable environment and schedule. She has never been out of the hospital before, so Monday will be a big day of firsts! First time outside, first car ride, first time in her stroller, first time to sleep in her own bed. Please be in prayer for all of us as we prepare for this big transition and especially for Ellis as she enters a whole new world!
Ellis, who taught you how to wink?
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