Quick update

Ellis's appointments today went well. Her doctors are not changing anything at this time, which is reassuring and slightly disappointing at the same time. Her eyes are stable and we are supposed to keep patching four hours a day. Her swallowing function is about where it was several months ago. She does well in general but still has trouble controlling food sometimes and does aspirate a trace amount every now and then. We can keep giving her small tastes and new things to try, just no more than 15 mls (3 teaspoons) a day. This is all good news because she is maintaining very well. I think I had gotten my hopes up that her swallowing had improved because as the one feeding her it seems like she is doing so much better, but the test showed us what we can't see from the outside. We are thankful that such things are available so we can hopefully avoid pushing her too hard before she is ready. Ellis was such a little wonder woman today, cooperating for the most part with the demands of the test. Even as I was trying to get her to drink icky barium and shooting thickened paste into her mouth she behaved very well. She didn't like it, but she hid her face instead of throwing a fit. Sweet baby.