Granny Janny caught this funny moment on tape a week or so ago. Ellis is allowed to play with the faucet as long as someone is with her. I am usually the one who comes in after a while and makes her do something less entertaining, like going home or sitting still for an hour to have a feed. When she heard me talking in the next room, she conceived of a way to prolong the fun. Stinkerface!
Our daily trials with the Passy-Muir valve have been challenging this week. There are some days she handles it well and others that end in angry spit-ups and tears. I feel so mean scaring her this way, because for those few seconds she feels like she can't breathe. But in the good moments she will take a deep breath in and make a sound out of her mouth. These are encouraging small steps, even though she can still only tolerate wearing it for around 30 seconds. We will keep going, however, in the hopes that she will soon tolerate it for much longer periods.
Happy Thanksgiving everyone! Ellis will be enjoying a few licks of mashed potatoes and whipped cream at dinner.
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