Boo

Ellis did great yesterday with her capping trial but after she went to sleep had some problems. She's fine and her doctors immediately stopped the trial and we are being sent home today instead of completing the 48 hours. We will continue to work with her valve during the day at home and she will need to return sometime soon for some more minor surgery to remove tissue narrowing her breathing passages. We can try the capping again once all that is done and healed and her doctor feels she is ready. So even though this capping trial is officially a "fail," we are grateful that she did so well when she was awake, which is a huge improvement over anything we have seen up to this point. We are trying not to get discouraged and know that she is still on the right path. But I suppose we did get our hopes up a bit that she would pass the trials and be on the fast track to getting the trach out. We trust God for his timing and are thankful for all your prayers and words of support.