Good to Be Home

Ellis is back to her peppy self. She is still practicing with her trach cap during the day, although we haven't done it nearly as much here at home as we did in the hospital. She has figured out how to pull it off and has become quite opinionated on the matter. We are also still doing her Passy-Muir valve as much as she can tolerate, but only during the day. Until her next procedures we will just keep practicing.
Something fun is coming up this weekend! We are going to take Ellis to church for the first time for a baby dedication ceremony on Mother's Day. We are not exactly sure how she will react to being around so many people or up on stage, and we still can't take her to the nursery. But we are determined to make this work and will just take it one step at a time. And we look forward to introducing her for the first time to the members of her church family who have supported and loved us more than we can ever put into words. Soon Ellis will grow to love each one of you as much as we do!

Feeding Spot and the other fishies