Ellis celebrated her seven week birthday by starring in her first real photo shoot! The hospital hired a professional photographer to take some pictures for marketing and PR, and some of her nurses chose her to be one of the featured babies. I got to be in some of the pictures, as did her regular day nurse. We will get copies of the pictures eventually, and I will be glad to share. Ellis slept through the whole thing, but still looked cute as a button. You might see her someday on a billboard or brochure! (This picture is not one of those from her photo shoot. It's just a cute one of mine. )
Tomorrow Ellis will have surgery for a permanent/temporary feeding tube. (Permanent because it is the kind that is surgically inserted into her stomach, temporary because we hope it will not be that long before her swallowing functions improve and she can have it removed.) Greg and I will be trained on how to feed her this way after we take her home. Of course we wish she did not need the feeding tube, but she will be a lot more comfortable once it is done, and this is the only way right now for her to get the nutrition she needs without risking aspiration and possible pneumonia. We also take comfort in the fact that most babies in her situation with feeding tubes only have to have them for several months, or usually at the most a couple of years. We are just glad it is one step closer to taking her home and giving her the chance to do "normal baby stuff."
Here are a few more photos I snapped recently.
Auntie Kelly came to visit for a day!
Ellis with her new little lamb, a gift from dear friends Amy & Ben.
Napping together
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