Ellis has had a rough couple of days and needs your prayers. She is stable and comfortable now, but she has had lots of trouble since the weekend breathing and swallowing. Last night at 3 am her doctors decided she needed to be put back on the breathing tube, we hope temporarily, to get her over what they think is an infection of fluid in her lungs. They are still doing more tests to figure out if that is indeed the problem. Her swallowing test yesterday also did not go as well as we had hoped. It showed that some of the muscles and nerves that are needed to protect her airway when she swallows are not working correctly yet, most likely due to the way they formed around the mass before she was born. In time these muscles and nerves could grow to do their jobs, but for right now she will have to still have her feeding tube, even after we are able to take her home. We are not sure how long it might take for her to learn to swallow properly, but we are optimistic that her doctors say she can keep working on it.
We know these things are minor setbacks on a long road that has been, and will continue to be, mostly positive. God has His hand on our little girl and we have faith she is going to be fine. We share these things with our friends and family so that you all can share our hopes.
Tell Ellis to hang in and hang on. I am wishing and hoping for all good things for that cute little girl. She is in my thoughts numerous times each day.
ReplyDeleteWe are keeping you guys in our thoughts and prayers. Hugs and lots of love!!
ReplyDeleteHi Ellis!
ReplyDeleteIt’s Saturday and I have heard from you in a couple of days. So I worry. I know mommy and daddy are busy taking great care of you. I bet you like it better when mom is there to snuggle you when you wake up instead of the nurses. The nurses I hear are very nice, but they aren't as soft as mommy are they.... You are a very strong girl like your daddy. Tho we have yet to officially meet, I feel like I know you already! Soon though, when you feel up to it, I'll come see you and we can have a fun visit. Prays and kisses
Donna